Hey my Lovelies,
Fibromyalgia is a very debilitating chronic illness that not only affects your health and well-being but it also slowly makes you leave behind things that you once really loved to do.
Here are 5 things that Fibromyalgia made me Leave behind!
1) Leaving the house & wearing heels
I really like heels. Specifically 4.5-inch stilettos Lol 🤦♀️
I have the ability to wear heels but the aftermath is that my feet burn even more than before I put them on. If I saw a dress that I liked I would imagine what heels would go with it and get excited at the thought of the whole outfit coming together and looking at least a little ‘put together’. Now, I’m trying to get rid of the heels and clothes that I no longer wear because they’re too big or physically too taxing on my body. If I do see a pair of heels I like then nowadays it takes extra efforts to decide whether or not I should go ahead and BRAVE it… Only for special occasions though.
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I completed my level 2&3 Hairdressing Diplomas and started my own business freelance hairdressing when I was 19. Due to my physical health, I have stopped hairdressing and it’s a big part of me that I’ve lost since my Fibromyalgia has gotten worse.
I used to love hairdressing, especially cutting and colouring before my illnesses became way too difficult to manage & I had to stop completely.
My hairdressing slogan was, “Hairstylist… touching more ♥ than hair!”
The thing I miss the most about hairdressing is getting creative, connecting with people & seeing them transform and brighten up after a new hairdo. I’m learning that although I may not be able to have my hairdressing business anymore or work normally how other people do I still have a purpose in this world & can still try to connect with people, spread love & kindness.
3) Painting my nails
I’ve never gotten acrylic nails from a nail shop done before but I use to routinely paint my nails all different bright colours, as you can see from the picture above.
I haven’t painted my nails in almost 2 years. As a person who used to paint their nails religiously 2 years is a very longggg time. I used to be so on point with painting my nails. They would be bright colours, sparkly & always different every week.
The chemical smell of nail varnish irritates my asthma & gives me an instant migraine, makes me nauseous, my energy is constantly low + my hands are always burning with nerve pain so painting my nails would be less pampering and more of a painful chore for me.
4) Being an active Sporty girl
When I was younger I used to love doing a lot of physical activities. Anything sporty and adrenaline-fueling I was up for the challenge. I got myself rainbow skates when I was a teen and was determined to take them for many spins in the park, I got a couple of sessions with them until it just became too much for me to cope with.
Other sports activities I used to take part in/enjoy:
- Dancing (it was a part of my P.E and compulsory for the subject + I actually did love to dance)
- Cycling (especially on bike tracks)
- Running track – sprint/relay
- Ice skating
- and any more… ( I’m little but I was very rough)
With chronic pain and other chronic illnesses, the first thing Dr’s or Abled bodied people think is, “maybe you should exercise more”. The theory that you can exercise your way out of a chronic illness is a load of rubbish. Most people who are chronically ill started out being very active people and cannot do the same amount due to the detrimental effects it would have on our bodies.
5) My funny bone (My Smile)
I admit that Fibromyalgia has made me lose my smile. Living with long-term physical and mental illnesses is very bleak. It’s not that you don’t want to smile and be happy, but it’s extremely difficult to do so when you’re literally falling apart and you have just about enough energy to breath and get through each day. It’s not as simple as remembering HOPE and counting your Blessings, because the truth is just because you can’t find the strength within you to smile at this present moment doesn’t mean you’re any less grateful for life.
I’m slowly working my way to a better me, in all aspects and one thing I’ll try to never leave behind is my essence. The love & light I have within.
Thank you for reading.
What important things have your Chronic Illness caused you to forget?!
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4 thoughts on “5 things Fibromyalgia made me Leave behind”
We are pretty much in the same boat. Well of course we because we have fibro lol. I can’t even put heels on, like try them on anymore. I gave up on my nails YEARS ago. I too had to stop doing hair which people weren’t too happy about. I mainly did family and friends. I was never overly active, I’ve had fibro/chronic fatigue for 26 years. But I’d give anything to be more active than I am now with way less pain and way more energy! Fibro has stolen my smile, that’s one thing “normies” can’t truly understand. It’s taken my hair, body, and hope. Fibro has taken so many things from me but we’d be here all day!
I applaud you for being able to keep up with your blog. I’ve been meaning to tell you that for some time now. That takes energy like no other (for me anyway). Keep up the good work! 💜
It is so sad when you think about the things you have left behind. When I left my job, I also left my colleagues which really saddened me. I used to be so busy and be an active member of a choir and amateur dramatics group on top of my job, these have been left behind too.
Thankfully, I have some home-based passions I have been able to continue like cardmaking and genealogy. Without these, life would be so much bleaker.
The silver lining is that I have gained an online spoonie community of people who understand exactly what it is like to have a life changing condition, so that is the blessing.
Thank you for sharing with us your experiences with your condition. Not everyone’s experiences are the same. I don’t know a lot about the condition so you have given me more insight into it by sharing this. Thank you.
I do hope you’re okay. 😊
I am so sorry that illness has made you give up these things. Sending you love and my best wishes. I hope that you are able to find some different things to do that you will enjoy as much. Thanks for sharing.